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The internet offers great information - if you know where to find it. To help you throughout your journey, below I share some of my favorite websites, organizations, and non-profits.
Pam Ostrowski, founder of Alzheimer's Family Consulting, is a dementia expert who guides families dealing with Alzheimer's or dementia. She’s been in your shoes. Through her dementia guidebook and personal coaching, Pam will help relieve the frustration, guilt, and decision-fatigue that can be part of the dementia caregiving journey. Pam is a Certified Senior Advisor (CSA)®, Certified Dementia Practitioner (CDP®), and Certified in Dementia Care® (CDC®)
Want peace of mind when making medical decisions for your person living with dementia? ER Physician Dr. Brittany Lamb is your resource! Her passion is helping people understand that advance directives are not enough. Through her course for caregivers, "Make Your Plan with Dr. Lamb" her clients are guided through a process to create a plan for their person's medical decisions now and into the future.
Looking for resources for Caregivers? This is the place! NAC's mission is to be an "objective national resource on family caregiving with the goal of improving the quality of life for families of choice and families of kin." This website is full of helpful resources.
Are you a busy professional managing the healthcare of a loved one while trying to balance your career and personal life? West Status provides tailored, compassionate support to families and individuals navigating the complexities of healthcare for their loved ones. Our mission is to help individuals reclaim their time, reduce stress, and focus on what truly matters - all while ensuring their loved ones receive the healthcare management they need.
Are you looking for easier, safer ways to care for your loved one at home? Christina & Cindy at Adaptive Equipment Corner provide education and resources to enhance safety, comfort, and peace of mind for seniors, family caregivers, and professional caregivers. Visit AECorner.com to subscribe to their Video Resource Library, watch adaptive equipment demonstration videos, or schedule a FREE 15-minute consultation to discuss your specific needs.
American Music Therapy Association's will educate you on the benefits of music therapy and how to access quality music therapy. On their website, they share the clinical and evidence-based use of music therapy. Check it out - perhaps music therapy can help your sick loved one.
Bridgetown Music Therapy is sparking joy and connection for older adults living with dementia. Their virtual music engagement program offers on-demand access to over 350 dementia-friendly therapeutic music sessions. You can tap into the expertise of a Board-Certified Music Therapist and Certified Dementia Practitioner through this high quality yet affordable program.
Ways 2 Wellness is a custom publishing company on a mission to support seniors and dementia caregivers. Each publication contains custom-created, stimulating puzzles, games, and art projects for your seniors. Fun topics every month keep the mind engaged while stimulating the brain.
Cancer and Careers is dedicated to empowering and educating people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events.
Cancer Care is a national nonprofit organization that provides free, professional support services for anyone affected by cancer.
Cancer Support Community is a national organization with centers around the country and into Canada and provides cancer patients and their loved ones with support, education, navigation and hope – free of charge. Look for the helpline as well as the map to find an in-person location near you.
ChemoCare is the brainchild of Scott Hamilton, the Olympic gold medalist figure skater. During his cancer journey, he discovered that it was difficult to find a reliable online resource where information about chemotherapy was presented in a clear, easy-to-understand, and easy to locate format. ChemoCare.com is a comprehensive resource for cancer patients and their caregivers that provides chemotherapy drug and side effect information, cancer wellness information, and links to additional reliable resources and organizations.
F*ck Cancer takes a bold approach to the fight against cancer. Their focus is two-fold. One goal is to educate people about early cancer detection and prevention. The second goal is to "create positive & enriching life changing experiences for cancer fighters." Through their Dyin 2 Live Dreams program, they seek to uplift and inspire individuals battling cancer by offering unique experiences that bring hope, strength, and resilience.
GRYT Health is a company founded by cancer survivors with a sharp focus on advocating for cancer patients, survivors, and caregivers. At GRYT Health, the patients and caregivers they work with ALWAYS come first! One area of expertise they have is connecting cancer patients with research opportunities. See how GRYT can support the cancer patient in your life.
Man Up to Cancer is changing the way men go through cancer by helping men avoid isolation during their cancer journeys. They offer peer-to-peer support, an annual retreat, chemo backpack program, and local chapters — all geared toward improving the quality of life of their members, and changing the way men go through cancer.
National Cancer Institute is an accurate, up-to-date, comprehensive cancer information from the US government’s principal agency for cancer research.
Navigating the complexities of cancer is overwhelming. As a result, many people miss out on impactful resources, guidance, and connections. We Are Here is changing that by modernizing cancer navigation. Rooted in a shared vision to improve the lives of patients, loved ones, caregivers, and survivors, We Are Here has created a supportive hub that connects people directly to the tools they need — exactly when they need it.
MD Anderson Cancer Center offers support to children and teens dealing with a parent's cancer diagnosis. They answer questions and provide tools to help them cope. They also offer advice to parents who aren't sure if or how to approach the cancer conversation.
Stupid Cancer supports adolescents and young adults who have been diagnosed with cancer. They connect them with "age-appropriate resources and peers who get it." Furthermore, their mission is to "empower adolescents and young adults affected by cancer by ending isolation and building community.
Family Care Circle is an app created to improve communication between family members when caring for a sick loved one. The Family Care Circle app can help you track appointments, notes, incidents, transportation needs, and more. It will also enable you to have notes ready to discuss at every doctor's appointment with confidence.
Portals serve patients. Primary Record serves families. It’s the one place to organize medical records, track updates, and keep family members on the same page. Download key health info from patient portals, add notes and files, and use AI-powered search to surface critical details and uncover insights that help you make informed health decisions. Family plans are FREE!
Bio-Med Central is dedicated to publishing the best open access journals across their portfolio of over 250 titles. They are committed to driving progress in biology, health sciences, and medicine.
The Free Medical Dictionary offers several benefits for advocates. One helpful tool is typing a word into the search bar to populate a list of options. This is helpful when searching for the name of a medication or disease which you are not sure of how to spell. Second, when searching for a term, a list of relevant periodicals and articles will populate which can greatly aid in research.
Searching for the best doctor for your loved one? Health Grades will allow you to search for the kind of doctor your loved one needs in their area. They also include which is such a great way to assess if they are a good fit.
Medline Plus® shares information on health topics, medications, and supplements. They also have a section on medical tests and have a medical dictionary.
The Medicine Net provides a lot of great information. This site includes a medical dictionary, information on medications/ supplements, and an entire section on diseases and conditions. Happy digging!
The National Center for Biotechnology Information is one doctors and pharmacists use to access biomedical and genomic information and you can use it too!
PubMed® is part of the National Center for Biotechnology Information site and comprises more than 35 million citations for biomedical literature from MEDLINE, life science journals, and online books.
Similar to Medicine Net, on WebMD, you can search for information on medications & supplements as well as conditions & diseases (including those specific to children). You also can search for podcasts, read message boards, find a doctor, and much more.
You may remember Webster's Dictionary from when you were in school ~ this is an online version of their medical dictionary. Their website allows you to easily search for medical terms and abbreviations. Their motto - "Become an informed health-care consumer!"
Pink Aid provides 3-6 months of non-medical financial aid for patients in active treatment for breast cancer. Payments are made directly to their creditors for housing, transportation, utilities, and insurance. Their financial bridge program improves treatment adherence and survivorship outcomes.
GoodTrust empowers you to easily protect your physical and digital assets, provide instructions on how you want to be cared for, and name guardians for your children and pets. Our all-in-one Smart Estate Planning service includes Will- and Trust-based plans for the entire family, with unlimited updates, and across all 50 states for one affordable price.
Fundly will guide you on how to set up a donation website and customize it to fit your needs. They have no raise requirements or start-up fees.
Go Fund Me's goal is to make setting up a fundraiser easy by following 3 simple steps. You will create a campaign with a fundraiser goal, share it with family and friends, and then manage the donations.
Care Calendar allows you to create a calendar to organize meals and visitors easily. Not only will they handwrite a personalized message, but they will also address, stamp, and send it. Talk about service. You can find the cards under "Gift Shop".
Caring Bridge allows you to share health updates with family and friends and coordinate their help. People wanting to support you and the patient is wonderful, but it can also be overwhelming, Caring Bridge will allow you to set up a personal webpage for the patient and request/accept offers of help.
Lotsa Helping Hands will help you coordinate meals, coordinate rides to appointments, and set up care with family and friends. Also, if interested, you can act as a volunteer for someone in your neighborhood who needs help.
Meal Train is designed to help you manage meals. Not only does Meal Train allow you to create an online meal calendar, but it also allows you to include a list of dietary needs, set up a donation fund, send invitations & email reminders, and more.
Sign Up Genius is a site you can use to organize a group. Whether it is meals or visitors, sign up genius allows you to create a signup, invite others, and send out reminders.
Take Them A Meal not only organizes meals, but they also send prepared meals. Click on the tab "Send Them A Meal" to choose from a variety of meal choices. The good news is they also cater to different diets (Vegan, Vegetarian, Gluten-Free, etc.) and they offer gift cards.
Looking for the perfect gift for a patient, advocate, or someone grieving? Click here or visit the “Gifts” tab for a curated list of unique and thoughtful gift ideas to show your support and care.
Baked by Melissa makes sweet bite-size cupcakes everyone will love! They also offer gluten-free and vegan options for those with dietary restrictions. Baked by Melissa ships anywhere in the US.
With Edible Arrangements, you can send your loved one healthy edible "flower" arrangements made of fresh fruit. Edible arrangements may be pricey, but when you receive one you understand why. They also make chocolate-covered fruit gifts.
I’m not always a fan of traditional gift baskets—they can feel limited. That’s why I recommend GiftTree! They offer a wide variety of gift baskets, flowers, and plants, plus same-day shipping if you order before 2 PM PST—perfect for last-minute gifts.
Harry and David are known for their delicious pears, but they offer a variety of elegant and high-quality food-related gifts.
Hospital Delivery Gifts offers a way to get your hospitalized loved one a gift (e.g. gift baskets, flowers, balloons, etc.). They offer same-day delivery and have access to over 8000 hospitals in both the US and Canada.
Shari's Berries makes some yummy chocolate-covered strawberries. They offer white, milk, and dark chocolate coverings as well as different toppings. They also ship nationwide.
What is more comforting when you are sick than soup? Spoonful of Comfort will ship your loved one ready-to-eat soup, Bacci rolls, and cookies. Plus, you can always add some extras like tea, honey, candles, etc.
Sweet Street offers a plethora of desserts from cakes to cookies to pies. This is sweet tooth heaven.
What is better than a warm cookie? Tiff's Treats delivers freshly baked cookies so when they deliver them they are still warm.
Wicked Good Cupcakes is delivers cupcakes in a jar - each one is handcrafted from premium ingredients, decadent buttercream frosting, and delicious toppings and fillings. Wicked Good Cupcakes is a perfect pick for any sweet treat delivery.
A Haven is a nonprofit organization supporting children ages 3-25 and their caregivers after a death has occurred. A Haven provides free grief support group services to families and school students local to Chester County, PA. For those not local to PA, A Haven offers free concrete resources covering a variety of grief support topics available to download, print, or share for those in need of guidance about supporting grievers.
Camp Erin is the largest free national network of grief camps for kids, teens, and families who have experienced the death of a significant person in their lives. Led by bereavement professionals and caring volunteers, Camp Erin provides a safe environment for children, teens, and their adult caregivers to explore their grief, learn essential coping skills, and make friends with peers who are also grieving. Campers attend day and overnight programs that combine grief support and education with fun camp activities.
Experience Camps is a national, no-cost program for grieving children who have experienced the death of a parent, sibling or primary caregiver. They offer one-week, overnight summer grief camps, year-round programs, and content help reframe the experience of grief, and empower kids with the necessary coping skills to move forward with their lives. Through compassion, connection, and play, Experience Camps allows grieving children to embody a life full of hope and possibility.
Family Lives On supports the lifelong emotional well-being of children and teens whose mother or father has died. The organization also offers education programs to raise awareness of the impact of grief and loss on a child. Honoring the past, celebrating the present and building the future.
Aging with Dignity provides families with end-of-life documents and conversation guides for their aging or dying loved one. Five Wishes is a document that asks the patient 5 key questions to help them with end-of-life decisions.
Are you caring for a terminally ill loved one? Help Texts sends expert, compassionate support straight to your phone, with messages personalized for your experience. Whether you're navigating caregiver stress, anticipatory grief, or deep sadness after a loss, you’ll get practical tips and comforting words twice a week. You can also invite up to two friends or family members to get gentle reminders about how to support you, so you don’t have to ask for help alone!
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