The internet offers great information - if you know where to find it. To help you throughout your journey, below we share some of our favorite websites, organizations, and non-profits.
What a great resource for caregivers! This website explains caregiver fatigue, offers free resources, caregiver quizzes & tips plus much more! It is definitely worth taking some time to click around and learn.
Looking for resources for Caregivers? This is the place! NAC's mission is to be an "objective national resource on family caregiving with the goal of improving the quality of life for families of choice and families of kin." This website has so many awesome resources I don't even know where to begin. Just go ahead and check it out!
This website is AMAZING! I wish I knew about Caring Bridge when my sister was sick. This site allows you to share health updates with family and friends and coordinate their help. People wanting to support you and the patient is wonderful, but it can also be overwhelming, Caring Bridge will allow you to set up a personal webpage for the patient and request/accept offers of help. I highly recommend using this to get organized and cut down on stress!
Talk about a caregiving expert! Peter Rosenberger has over 30 years of experience caring for his wife, Gracie. He has books, a podcast, a radio show, and more.
Looking for some personalized support? Nicole Dauz may be your answer! Being a mother of two children with special needs, Nicole knows a lot about the stresses of caring for another. She offers "one-on-one self-care coaching for caregivers who want to regain control in their lives." Check her site out to see if it's a good fit!
Theresa Wilbanks offers personal caregiver support. She is a Certified Caregiving Consultant whose vision is to "make every caregiving journey less stressful and more meaningful". She currently is caring for her 99-year-old father and has 25 years of formal work experience so she can empathize with where you are today. Theresa will work with you one-on-one to strategize and develop solutions to support your caregiving needs.
This site will educate you on the benefits of music therapy and how to access quality music therapy. I love the idea of music therapy. I mean I know music can definitely affect my mood. Also, on their site, they talk about the clinical and evidence-based use of music therapy. Check it out - music therapy may help your sick loved one!
I love how this nonprofit organization takes an aggressive approach to the fight against cancer. Their focus is two-fold. One goal is to educate people about early cancer detection and prevention. The second goal is to "create life-changing experiences for cancer fighters." How awesome is that?!
How can you not admire & love a company that was built by cancer survivors and whose entire focus is advocating for cancer patients, survivors, and caregivers? This means that the patients and caregivers they work with ALWAYS come first! For example, one of their goals is to connect their patients with research opportunities. GRYT has many awesome ways they support cancer patients and their caregivers you must check them out!
There are two things I like about this site. One, when you type into the search bar a list of options populates. This is so helpful when you are typing in the name of medication or diseases that you aren't 100% sure how to spell. Believe me, I've been there. Second, once you search a term, scan down and you may find relevant periodicals and articles.
Searching for the best doctor for your loved one? Health Grades will allow you to search for the kind of doctor your loved one needs in their area and read patient reviews. Having patient reviews is such a great way to assess if they are a good fit.
The Medicine Net provides a lot of great information. This site includes a medical dictionary, information on medications/ supplements, and an entire section on diseases and conditions. Happy digging!
Similar to Medicine Net, on WebMD, you can search for information on medications & supplements as well as conditions & diseases (including those specific to children). You also can search for podcasts, read message boards, find a doctor, and much more!
You may remember Webster's Dictionary from when you were in school ~ here is an online version of their medical dictionary. I like this site because you can easily search for medical terms and abbreviations. Most of all, I love their motto "Become an informed health-care consumer!"
This site provides access to biomedical and genomic information. The resources on their site seem endless.
This site is a great resource for life science journals, online books, and biomedical literature. A great place to dive into your badass research.
Medline Plus® shares information on health topics, medications, and supplements. They also have a section on medical tests and have a medical dictionary.
Bio-Med Central offers access to high-quality peer-reviewed journals. Another great resource when doing your badass research.
Use this link to save & print the AVPU scale for your reference.
This site explains how the NEWS Values work and offers several free downloads. I recommend clicking on the link titled "NEWS2 Chart 1 The News scoring system" to view the NEWS Values chart.
What I love about this site is that not only can you easily create a calendar to organize meals and visitors, but they will also send actual printed cards for you! How cool is this? They will handwrite the message, address and stamp it and then send it. Talk about service. You can find the cards under Gift Shop.
This company will help you coordinate meals, coordinate rides to appointments, and set up care with family and friends. Also, if interested, you can act as a volunteer for someone in your neighborhood who needs help. This site will for sure support you in your Badass Advocate journey!
Meal Train is another great site to help you manage meals. Not only does Meal Train allow you to create an online meal calendar but it also allows you to include a list of dietary needs, set up a donation fund, send invitations & email reminders, and more.
Sign Up Genius is a site you can use to organize a group. Whether it is meals or visitors, sign up genius allows you to create a signup, invite others, and send out reminders.
Like the other sites mentioned above, Take Them A Meal allows you to set up a meal calendar. One thing that sets this company apart, they will send prepared meals as well! Click on the tab "Send Them A Meal" and chose from a variety of meal choices. The good news is they also cater to different diets (Vegan, Vegetarian, Gluten-Free, etc.) and they offer gift cards.
Baked by Melissa makes sweet little bite-size cupcakes that are so yummy! I also love that they offer gluten-free and vegan options for those with dietary restrictions. Baked by Melissa also ships anywhere in the US.
With Edible Arrangements, you can send your loved one healthy edible "flower" arrangements made of fresh fruit. Edible arrangements may be pricey, but they are done really well. They also make chocolate covered fruit trays.
I don't always love gift baskets because the options are always limited. GiftTree solves that issue, they offer a variety of gift baskets, flowers, and plants. They also order same-day shipping if you order before 2 pm PST - gotta love that!
Harry and David are known for their delicious pears, but they offer a variety of elegant and high-quality food-related gifts.
This company offers a way to get your hospitalized loved one a gift (e.g.gift baskets, flowers, balloons, etc.). They offer same-day delivery and have access to over 8000 hospitals in both the US and Canada. This service can be especially helpful during Covid-19.
Shari's Berries makes some yummy chocolate-covered strawberries. They offer white, milk, and dark chocolate coverings as well as different toppings. They also ship nationwide.
What is more comforting when you are sick than soup? This company will ship your loved one ready-to-eat soup, Bacci rolls, and cookies. Plus, you can always add some extras like tea, honey, candles, etc.
Sweet Street offers numerous options when it comes to desserts. They have almost any kind of dessert you can think of from cakes to cookies to pies. Sweet tooth heaven.
What is better than a warm cookie? Tiff's Treats delivers freshly baked cookies so when they deliver them they are still warm. What???
This family-owned business makes and delivers cupcakes in a jar! They are rich but delicious - that is if you like rich, yummy cupcakes (you can't see me but I'm raising my hand).
This link will take you to a page explaining how to set up a personal fundraiser through Facebook.
Fundly will guide you on how to set up a donation website and customize it to fit your needs. They have no raise requirements or start-up fees.
Go Fund Me's goal is to make setting up a fundraiser easy by following 3 simple steps. You will create a campaign with a fundraiser goal, share it with family and friends, and then manage the donations.
When someone close to you passes away, you join a club that you never wanted to join. The only positive thing about there being a club is that others can truly understand you. Camp Erin allows children and teens (ages 6-17) to bond with other children who have gone through something similar. Camp Erin is a weekend camp that includes both camp activities and grief support and - gets this - it is free of charge for all families. How amazing is that?! Check it out to see if there is a Camp Erin near you.
What an amazing organization! They offer grieving children a free, one-week camp where they can connect with other children who are in the same position.
Family Lives On supports grieving children. Their mission is to "support the lifelong emotional well-being of children whose mother or father has died." On their site, they also explain that their "program provides opportunities for intentional remembering, creating a safe haven for grief, communication, and celebration." I LOVE this!
MD Anderson Cancer Center offers support to children and teens dealing with a parent's cancer diagnosis. They answer questions and provide tools to help them cope. What a valuable service!
This is a service every family should use! Securing Memories is a husband-wife owned company whose goal is to help family's preserve their precious memories. It is safe to say that no one will ever regret documenting family stories & photos and Securing Memories offers various ways to help you do so.
Stupid Cancer supports adolescents and young adults who have been diagnosed with cancer. They connect them with "age-appropriate resources and peers who get it." Furthermore, their mission is to "empower adolescents and young adults affected by cancer by ending isolation and building community."
Aging with Dignity provides families with end-of-life documents and conversation guides for their aging or dying loved one. Five Wishes is a document that asks the patient 5 key questions to help them with end-of-life decisions. I encourage you to check out their site and see if they will provide the support you need.
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